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Company Details - Cure SMA India

Cure SMA India Logo

Cure SMA India

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India

Cure SMA India is a dedicated branch of the global Cure SMA organization that focuses on supporting individuals affected by Spinal Muscular Atrophy (SMA) in India. The organization aims to raise awareness, provide resources, and advocate for research and care options for those impacted by this condition.

CCI Score

CCI Score: Cure SMA India

69.31

Latest Event

Cure SMA India Foundation Files Petition Against Hate Speech

Cure SMA India Foundation, associated with Cure SMA India, filed a petition in the Supreme Court alleging that comedian Samay Raina and others made insensitive remarks targeting persons with disabilities by mocking the high costs of treatment for Spinal Muscular Atrophy (SMA). The petition calls for both remedial and punitive measures to guard against hate speech and to protect marginalized groups.

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LEADER

Cure SMA India is currently rated as a Leader.

+45 to +100 CCI Score
Companies in this range actively lead the fight against authoritarianism by rejecting oppressive practices and championing democratic values. They implement robust policies, engage in transparent governance, and drive initiatives that set the standard for corporate responsibility.

Latest Events

  • Cure SMA India Foundation Files Petition Against Hate Speech Logo
    MAY
    05
    2025

    Cure SMA India Foundation, associated with Cure SMA India, filed a petition in the Supreme Court alleging that comedian Samay Raina and others made insensitive remarks targeting persons with disabilities by mocking the high costs of treatment for Spinal Muscular Atrophy (SMA). The petition calls for both remedial and punitive measures to guard against hate speech and to protect marginalized groups.

  • +80

    Public and Political Behavior

    July 20

    The legal petition initiated by Cure SMA India Foundation constitutes a proactive measure in defending the rights of persons with disabilities by challenging hate speech and insensitive commentary. This action contributes to protecting marginalized communities and upholding civil rights, aligning with anti-fascist and anti-authoritarian values.

    Supreme Court issues notice to comedian Samay Raina and 4 others over alleged insensitive remarks against persons with disabilities

  • Cure SMA India Pursues Legal Action Against Discriminatory Remarks Logo
    APR
    21
    2025

    Cure SMA India, through its affiliated Cure SMA Foundation, has approached the Supreme Court to challenge insensitive remarks made by comedian Samay Raina concerning treatments for Spinal Muscular Atrophy and derogatory comments about persons with disabilities. The plea demands that the court implead all responsible parties and consider measures to protect the dignity and rights of disabled individuals.

  • +80

    Public and Political Behavior

    July 20

    The organization has actively sought judicial intervention to address public remarks that devalue and demean persons with disabilities. By petitioning the Supreme Court to implement measures protecting marginalized groups, Cure SMA India demonstrates a commitment to safeguarding civil rights and countering authoritarian misuse of free speech, thereby earning a positive score in the Public and Political Behavior category.

    'Disturbing' : Supreme Court On Comedian Samay Raina's Remarks Against Persons With Disabilities

  • Advocacy Against Hate Speech Targeting Disabled Persons Logo
    APR
    21
    2025

    Cure SMA Foundation, a branch of the global organization aligned with Cure SMA India, filed a petition in the Supreme Court urging legal action against hate speech and derogatory remarks targeting persons with disabilities. This move aims to protect marginalized communities and uphold respect for human dignity.

  • +80

    Public and Political Behavior

    July 20

    By filing a petition in the Supreme Court to curb hateful and demeaning speech against disabled persons, the organization demonstrates proactive political advocacy that protects vulnerable communities and counters authoritarian rhetoric. This aligns with anti-fascist principles and emphasizes support for marginalized groups.

    SC raps Samay Raina, 4 others over remarks on disabled persons

  • Cure SMA India Endorses Historic Government Allocation for Rare Disease Treatment Logo
    NOV
    29
    2024

    Cure SMA India, through its parent organization Cure SMA Foundation of India, has expressed strong support for the Government of India’s unprecedented allocation of over Rs 900 Crore towards rare disease treatments, including SMA. The organization urged the government to expedite the centralized procurement process as directed by the court, emphasizing the critical need for timely access to life-saving treatments for SMA patients.

  • +70

    Public and Political Behavior

    July 20

    This event highlights Cure SMA India's active engagement in advocating for public health measures, reflecting its support for government initiatives that advance healthcare access and social equity for a vulnerable patient community. By urging swift government action, the organization demonstrates a positive stance in promoting progressive and inclusive policies.

    CSR News: Historic Rs 900+ Crore Allocation to Rare Disease Treatment

  • Cure SMA Foundation Applauds Historic Government Allocation for Rare Diseases Logo
    NOV
    26
    2024

    Cure SMA Foundation of India, a leading patient advocacy organization for SMA, has expressed its appreciation for the Government of India's historic allocation of over ₹900 crore towards rare disease treatment, including SMA. The organization urged the government to implement the centralized procurement process within 45 days, signaling strong support for progressive healthcare policies and collaborative stakeholder efforts.

  • +60

    Public and Political Behavior

    July 20

    The event highlights the organization’s public endorsement of the government and judiciary's proactive measures in addressing rare diseases. By applauding the allocation and urging timely implementation, Cure SMA Foundation of India demonstrates its commitment to advancing patient advocacy and supporting progressive governmental policies, which aligns with anti-authoritarian and pro-democratic values.

    Cure SMA Foundation of India Lauds Government and Judiciary for Historic ₹900+ Crore Allocation to Rare Disease Treatment — Healthcare Executive

  • Cure SMA India Commends Government Budget for Rare Disease Treatment Logo
    NOV
    26
    2024

    Cure SMA India, through the Cure SMA Foundation, acknowledged the allocation of over Rs 900 crore by the Government of India and the Delhi High Court for rare disease treatments, including SMA. The foundation expressed gratitude towards key governmental figures and called for the expedited initiation of a procurement process to ensure timely access to life-saving treatments.

  • +70

    Public and Political Behavior

    July 20

    The organization publicly endorsed the government and judicial actions that allocated substantial funding towards rare disease treatments. This reflects proactive public and political behavior that supports democratic accountability and enhances access to essential healthcare, aligning with anti-fascist, progressive advocacy for marginalized patient communities.

    Cure SMA Foundation acknowledges budget allocation for rare disease treatments

  • Cure SMA India Advocates for Increased Rare Disease Funding Logo
    NOV
    19
    2024

    Cure SMA India, through a virtual press conference, urged the government to allocate the ₹974 crore national fund for rare diseases as mandated by a Delhi High Court order, highlighting the urgent need for improved, multidisciplinary care for SMA patients.

  • +70

    Public and Political Behavior

    July 20

    Cure SMA India’s advocacy represents a proactive public effort to press for government accountability in meeting a court-ordered allocation for rare disease funding. This initiative supports improved healthcare access and multidisciplinary support for SMA patients, aligning with progressive values and strengthening public welfare.

    SMA Advocacy Group Presses Government to Allocate Funds as Court Deadline Looms

  • Cure SMA India Supports Petition Against Online Mockery of SMA Logo
    OCT
    16
    2023

    The Supreme Court summoned social media influencers after a petition from Cure SMA Foundation of India, an affiliate of Cure SMA India, alleged that the influencers mocked individuals with Spinal Muscular Atrophy (SMA). The move is aimed at enforcing respectful discourse and legal protection for disabled persons.

  • +80

    Public and Political Behavior

    July 20

    The petition filed by the affiliate organization represents a proactive public effort to counter hate speech and protect marginalized groups. By prompting the Supreme Court to take action against influencers who demean individuals with SMA, this event supports anti-fascist values and upholds the rights and dignity of the disabled community.

    SC gets tough on Samay Raina, other influencers for mocking rare disorder, seeks their presence in court

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