Company Directory - British Association of Clinicians in ME/CFS (BACME)
Company Details - British Association of Clinicians in ME/CFS (BACME)
British Association of Clinicians in ME/CFS (BACME)
WebsiteBACME is an organization dedicated to providing guidance and support to clinicians working with patients suffering from Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). They offer training, resources, and collaborative opportunities to improve the management and understanding of these complex conditions.
CCI Score
CCI Score: British Association of Clinicians in ME/CFS (BACME)
-4.55
-8.86%
Latest Event
BACME's Role in Flawed ME/CFS Training Materials
BACME’s guidance was incorporated into DWP training documents on ME/CFS, where its promotion of the outdated biopsychosocial model and discredited psychosomatic treatments undermines current NICE guidelines. This contribution is seen as ethically problematic, potentially harming vulnerable patients and enabling misguided government policies.
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BYSTANDER
British Association of Clinicians in ME/CFS (BACME) is currently rated as a Bystander.
Latest Events
- JUL202025
BACME’s guidance was incorporated into DWP training documents on ME/CFS, where its promotion of the outdated biopsychosocial model and discredited psychosomatic treatments undermines current NICE guidelines. This contribution is seen as ethically problematic, potentially harming vulnerable patients and enabling misguided government policies.
- MAR062025
BACME has called for the withdrawal of the outdated Cochrane review on exercise therapy for ME/CFS, arguing that the review's use of obsolete diagnostic criteria and failure to distinguish ME/CFS from chronic fatigue could lead to harmful clinical guidance. The organization advocates for an evidence-based update in line with 2021 NICE guidelines to better serve clinicians and patients.
+70
Public and Political Behavior
July 20
BACME's proactive stance on calling for the removal of an outdated and potentially harmful exercise review demonstrates a commitment to evidence-based medical practices and patient safety. This action aligns with progressive and anti-authoritarian values by challenging established but flawed guidelines that could adversely impact vulnerable patients.
BACME Calls for Cochrane to Withdraw Outdated Exercise Review for ME ...
- MAY162024
BACME’s annual conference was held behind closed doors during ME Awareness Week, prompting an open letter from patient advocates accusing the organization of perpetuating harmful treatment practices, including the endorsement of discredited therapies like GET and reliance on outdated clinical guidelines.
-40
Public and Political Behavior
July 20
BACME’s decision to conduct its annual conference behind closed doors, as opposed to transparent, community-inclusive events, contributes to concerns over concealment of historically harmful practices. The lack of an open platform prevents patient community scrutiny and accountability, reinforcing an environment where harmful protocols can persist, aligning with authoritarian secrecy trends.
BACME conference behind closed doors, as ME patients call it out - Canary
-50
Business Practices and Ethical Responsibility
July 20
The open letter from ME patients and campaign group Chronic Collaboration highlights BACME's longstanding history of supporting and promoting treatment guidelines that have resulted in patient harm. Their backing of discredited studies such as the PACE trial and ongoing reliance on harmful practices show a business practice lacking ethical responsibility towards patient welfare.
BACME conference behind closed doors, as ME patients call it out - Canary
- MAR092024
On March 9, 2024, BACME published an updated clinical practice document for severe and very severe ME/CFS that has been criticized for endorsing psychologising treatments like GET and CBT. Critics argue that these approaches contribute to the medical gaslighting of patients and further marginalize those already suffering from a debilitating condition.
-60
Business Practices and Ethical Responsibility
July 20
The updated guidance document promoted by BACME appears to support a biopsychosocial model that has been widely criticized for encouraging harmful treatments like GET and CBT. This approach has been linked to neglect and abuse of patients with severe ME, reflecting unethical practices that undermine patient welfare and contribute to ongoing marginalization. Such practices align with a broader pattern of neglect toward vulnerable groups, which is concerning from an ethical and anti-authoritarian perspective.
BACME: ME/CFS charities work with psychologising organisation - Canary
- OCT012023
In October 2023, BACME published its ME/CFS National Services Survey, offering critical insights into the state of services for individuals with ME/CFS. The survey, referenced during parliamentary questions on the implementation of the 2021 NICE guidance, provides data aimed at highlighting regional discrepancies and advocating for better support for a marginalized patient community.
+50
Public and Political Behavior
July 20
By publishing the ME/CFS National Services Survey 2023, BACME enhances transparency and supports accountability in healthcare service provision for ME/CFS patients, a historically marginalized group. This contribution aids in informing policymakers and challenging centralized inaction, representing a positive, anti-authoritarian stance in fostering inclusive, evidence-based healthcare.
Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE implementation
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Industries
- 621111
- Offices of Physicians (except Mental Health Specialists)
- 621330
- Offices of Mental Health Practitioners (except Physicians)
- 621999
- All Other Miscellaneous Ambulatory Health Care Services